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For my birthday, I asked people to donate to TTP

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For my birthday, December 7th, I ran an FB campaign for in lieu of presents for people to donate to an Ontario TTP NGO. Thank you all who donated via FB.

Some friends contacted me saying they did not trust donating via Facebook. I gave them their nearest TTP NGO.

Just so you understand the precarious health repurcusions of a TTP patient. When you are not in relapse and get sick, you need 12 units of plasma (Plemapherisis) daily minimum.

In my case, I need 30 units of plasma daily.

A Unit in blood products talk is one donor. Consequently, we are talking about 30 donors daily and in my case, all units must be my blood group.

CONSEQUENTLY, apart from the fact that we should donate blood regularly to save lives, there are a few people who suck a lot of blood products out of the system that not only should we donate when someone you know needs blood but donate as much as medically allowed because you could be saving someone’s child, mother, sister, etc..

This Christmas season, please give a stranger the gift of life. Give blood. In Uganda, you can contact Uganda Blood Services.

In other countries, you can contact your Red Cross which will direct you in case you do not know the contact for your Blood Service. 


***Diagnosed with TTP in May 2007.


About TTP

Thrombotic Thrombocytopenic Purpura (TTP) is a rare blood disorder, with between 1.2 and 11 new cases every year per million of the population. It is more common in women than men and, although it can affect people of all ages, the average age of diagnosis is 40 years.

TTP episodes are serious and life-threatening. It is considered a medical emergency and it is estimated that 10-20% of acute patients die from TTP, despite currently available treatments. TTP is a lifelong condition, as after their initial diagnosis many patients will experience further episodes of TTP (called relapses).

There are two main types of TTP – inherited TTP and acquired TTP

Key Points

TTP is a serious, rare and potentially life-threatening condition30%-50% of patients will experience multiple episodes of TTP (called relapses) after their initial diagnosisIt occurs when the ADAMTS13 enzyme does not function as it should, leading to small blood clots in the blood vessels, low platelet counts and destruction of red blood cellsIt is not known what causes the body to start producing antibodies against ADAMTS13 in acquired TTPPatients with TTP may experience a wide variety of symptoms, including fever, fatigue, headache, confusion and bruises or dots on the skinThere are two main types of TTP – inherited TTP and acquired



The name thrombotic thrombocytopenic purpura actually describes three of the main features of the condition:

Thrombotic refers to the formation of a blood clot inside a blood vessel.Thrombocytopenic refers to a condition in which the number of platelets in the blood is lower than normal.Purpura refers to purple bruises caused by bleeding underneath the skin.

However, these three features only tell part of the story of TTP. To fully understand how TTP affects the body, we first need to look in more detail at some of the components of blood. With TTP, we are interested in three components in particular:

Platelets.A protein called von Willebrand Factor (vWF) that is present in blood plasma.An enzyme called ADAMTS13 that is also found in the blood plasma.

—— AUTO – GENERATED; Published (Halifax Canada Time AST) on: December 24, 2019 at 08:27PM

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